Hi Lori. I did a search on Dr. Yakes for you on here...http://www.avmsurvivors.org/main/search/search?q=dr.+yakes
I did a search on here for you...http://www.avmsurvivors.org/main/search/search?q=dr.+yakes
I would absolutely suggest getting in touch with Pam- Carter's mom http://www.avmsurvivors.org/profile/Pamelatrudeau?xg_source=profiles_memberList
Also- if you do an advanced search under the member tab you can find a list of Yakes patients and even drill down to "foot" or other key words.
Carter is 11 (I think) and from reading your note above, I think it's possible that you and Pam will find many similarities between experiences. Carter was treated by Yakes, and I've had over 30 embo's with him for my facial AVM. Carter and I were lucky enough to be in for treatment on the same day last year and he is an awesome kid.
And yes, people have "concerns" about Yakes approach. ANd many doctors will poo-poo him simply from a political agenda and without a patients best interest in mind. And that is something that I find very hard to swallow. My 2 cents- it is a more "aggressive" treatment than most doctors offer. And he has great results in most of his patients. Are there some who don't get the absolute best outcome? Sure. Are there risks that do actually turn into reality for some people? Absolutely. And those are the things you have to weigh. There are risks with any doctor and any treatment. But Yakes does this day in and day out everyday. He IS an expert. Many doctors only treat AVM's or VM's occasionally. Yakes is dedicated to them. I trust him 100% and have seen a HUGE improvement in the size of my AVM, or the amt of blood flow dedicated to it, to the ulcers and pain I had because of it. I am a success story if not still in the works. And I've had small hiccups with my treatment. I currently have big ugly scabs on my lip and chin from blisters caused by my last embo. And I've lost some feeling around my chin and cheek. But seriously, I'll take that small and rare side effect based on the benefit I ultimately enjoy. The "cost" of those little items is well worth the prize. And of course I'll be back in Denver in about 2 weeks for my next embo. Meeting up with another leg guy Stu and planning the next fun thing I will do with all of the staff whom I totally love.
My advice is to do exactly what you are doing. Gather info, get opinions and options, seek info on others experiences both good and bad. And be as biased as you possibly can considering the sources of this info and considering you are a mom who is emotionally involved in the well being of your daughter! There is no easy answer, but I sincerely believe that what you are doing now will provide you with the BEST inputs in order to asses and make a decision.
I wish you the absolute best in this and am always available for questions!
I can't help you with this but I will definitely pray that you can find some treatment and hope for your daughter. Extremity AVM's are just so difficult to treat. I, personally, am a huge fan of Dr Yakes and his alcohol treatments as a cure for extremity AVM's - this opinion after the hundreds of hours of reading i have done on this site. He is such a devoted doctor and I am so thankful he can help patients with extremity AVM's. I'm sure you will hear from Shalon....:)
Let us know what Dr Yakes says about your daughter. My thoughts are with you.
Hello Lori, I am so sorry that your daughter is having this problem. I’m a “brainer”, so I cannot help you I’m afraid, though I and can, and will, keep you and your daughter in my thoughts and prayers. All the very best Lori, Luv, Lesley.
Thanks all for your thoughts and help! I will keep you posted on the journey!