Uterine AVM

Hi.

I was rushed to the hospital a day ago with heavy bleeding following a miscarriage 2 months ago. Initially we though it was retained product but after doing a Doppler scan revealed I. Have an AVM to the uterus which I was told is very rare. I don’t have children yet and really want them. Doctors are not sure of best method to treat this without comprising fertility .
I’m currently on medication to the clot the blood to prevent heavy bleeding but I continue to bleed and clot still . They want to treat me conservatively on meds fir now Any advice for longterm treatment ?

Also on contraceptive for 2 months to see if it is resolved by itself . Is this possible ?

Sending prayers your way and sure someone here will be able to assist you with your concern…God bless!

You may want to type "uterine avm" in the upper right search box. You'll find other discussions related to having a uterine AVM. That is a good place to start. Then you can connect with others who have uterine AVM. Good luck!

Lula...There also is an uterine AVM group on Facebook.

https://www.facebook.com/groups/UterineArteryembolization/

Wishing you the best!

Dear lulu , I have a extensiveAVM from my pelvis downwards internally which also is on the top of my uterus . I have had bleeds since I was very young .
In the last 10 years or so I think the most non evasive treatment is sclerosing and embolisation coils for AVMs . I have had both done myself . Have you seen a vascular surgeon ? Did they say how big it is ?
Have you had a MRI ?
Good luck lulu . Lis :slight_smile:

I had an embolisation done after my AVM ruptured 2 weeks after the birth of my daughter . 2 MRI’s later show it has resolved and I’m clear to have more children with close monitoring. Good luck… Find a really great doctor

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