I took my daughter in for her one-year post-op last week. She had an angio on Wednesday. The radiologist came out and told me that he saw a shunting vein. He said the neurosurgeon would decide treatment – possibly gamma knife or a fourth craniotomy.
My daughter saw the neurosurgeon the next day. That doctor said there was no nidus on the films so there was nothing wrong. He said things were fine, and we don’t need to see him again for 5 years.
I am not sure how two doctors at the same hospital can look at the same film and get opposite views. My husband gives me a bad time for getting a second opinion. I am disgusted, but really ready to move on and figure out what to do or think. I am most likely thinking of just letting the chips fall where they may. I am sick of asking for images and sending them around the country and waiting for results. I really am uneasy with the idea of another surgery. Cutting into the same spot four times seems like a lot of risk to the skin. Surgery itself shouldn’t be risky because all the surrounding tissue is dead.
Rose keeps bumping her head into things, falling into things, crashing down the stairs, getting hit by two basketballs, smacking her head on a metal bar at a playground, etc. Every time, she winds up with a headache. But I don’t think a very small draining vein could cause all this. I wish I knew.
I am doing my best to just focus on other things and to find some sense of normalcy to our lives. But this is never far from my mind.
Take care. I hope things are quiet and peaceful for all of you!