Hi, my son has recently been diagnosed with a cavernous malformation 19x14 mms in left temporal lobe. He's had 5-6 sudden and severe headaches/vomitting and nausea the last one came with uncontollable shakes. He's in Bellingham, WA north of Seattle, I'm in San Diego. I have a bizillion questions but I guess my biggest one is whether this is life-threatening, how soon should I get him seen by NS? Who's the best. He's 19 so he could probably go pediatric or Adult. I'd take him anywhere in the country. Have had two people recommend a NS in Seattle named Ojemann if anyone has hear of him.
Any advice would be much appreciated. It's not my first rodeo. My older son had Chiari I and basilar invagination. Surgeries in 2007/2008 to correct.