I need some help with a question for everyone about neurologists, with a little backstory. Okay okay… kinda rambling backstory.
I had a AVM resection craniotomy in October 2019 for an occipital AVM. Recovery was a little long- I was pretty much out of it until the end of February 2020. I went back to work for three weeks in March, and then into covid quarantine as of March 25, 2020. I’m only now going out into the world (I went into a bookstore last weekend. I haven’t been in a bookstore since before my surgery!) I finally got my second shot. So give or take, I’ve been at home for about 540 days. I know, I know… my timing really sucked for that craniotomy. As if there’s ever a good time.
When I left the hospital, my surgeon referred my case to a Neurologist. I didn’t choose him, he was just part of my care team. It was not a match made in heaven. He is elderly, not exactly “up” on current medical trends, and was unreachable most of the time, specially after quarantining started. I had a rough Spring and Summer last year because I didn’t have enough medications to deal with headaches and pain. He prescribed medications for seizures (I’ve had none before or after surgery, only the occasional phantom smells) and then left me dangling. I finally pinned him down, got him working WITH me to figure out pain management, and got him to understand I’m a smart cookie with a ton of research experience. I will research medications, ask questions, and demand intelligent answers.
But here’s the crux: HE’S RETIRING. I got a notice in the mail that he’s leaving and I’m supposed to find a new neurologist to take over. I was given a short list of three names to look over that are also from his neurology center. After researching those three a bit, none of them look promising. None of them list headache/pain management or aneurysms or AVMs in their interest fields.
SO here is my question finally! What are we supposed to be looking for in a neurologist? Is there a specific field? I thought I saw someone mention vascular neurologists but I honestly don’t remember if that’s right. Should their research/practice be specifically in AVMs or Headache/Migraine specialists?
My deficits are vision loss, memory problems, migraines/headaches. I do get tired out very easily still, and some times my gait is off.
Any advice you can give would be AWESOME. I live in MN so if there’s any neurologists known up here, feel free to offer up the name. I really am at a loss here as to what I’m supposed to be looking for.