Im sure there are quite a few of you who wonder what happened and want the full story. Im going to give you a short story that lasted about a year and a half. This story will be short but there is no way I can express the physical and emotional toll it took. So bare with me.
It all started August 31st 2007, I was sitting at the car wash across from Hoag Hospital on Superior. I was reading the newspaper and patiently waiting for the car to be finished. Suddenly I had a blind spot in my vision. Within 2 minuted that spot grew quite large and was like flashing colors. red, orange, green, blue, etc…It was quite a trip and also scary to say the least. Well, I got up and walked across the street right into the ER. As soon as I walked into triage I was completely blind, I was yelling that I was blind and starting to go into shock. They were trying to calm me down while placing me in a wheelchair. I was laid down in a bed and strapped up to wires and machines and needles and oxygen. The hospital was expecting a stroke. 45 minutes later BAM! my vision comes back perfectly. After my vision came back I was in tears by how thankful I am that I could see. I really enjoy scenery now.
Now, if anyone wants to know what it is like to be blind I will describe it. I would guess you would imagine everything would be dark or black but its not. It is a pale flesh color. Colorless I guess you could say. Pretty creepy. That was the beginning of a long battle. At the time I was living with a boyfriend and working for a tanning salon. Obviously I quit my job because I knew something was horribly wrong and I needed to spend all of my time figuring this out. The docs at the ER told me to go see a neurologist. That I did. However, I did not have insurance. I went to a free clinic who send me to a free neurologist. HAHA what a joke! She sent me through an MRI with NO DYE. Any medical professional knows that if they are searching for an aneurysm you have to use dye to see it. Well, they did not see it. So the neurologist told me that I get “visual migraines”. I knew that was wrong. I searched online my symptoms and it always came back saying aneurysm. I knew in the pit of my stomach that is what I had so I had a huge sense of urgency to find it because it is like a ticking time bomb that can kill me at any time.
So, I realized I needed to go back to work to get good insurance to keep fighting the battle. I got a receptionist position (for the lack of stress) and 4 months later got insurance. As soon as I got the insurance I went and saw 4 neurologists. I was mis-diagnosed by all of them. ALL OF THEM. They wanted to put me on headache medications and epilepsy meds…it was ridiculous. I told the docs that I would not take the meds without a CTA first. I was denied by 3 of the doctors saying they would put their profession and even WIVES (not kidding) on the fact that I don’t have an aneurysm. So, on to the 4th neurologist…I told this guy that I want a CTA and will not cooperate or go forward without it. He agreed with one rule, that “when the test comes back negative I have to take the meds that are prescribed” I agreed. Finally, October 1st 2008 I got my diagnosis of a 3MM aneurysm right behind my left nasal cavity.
At that point I wanted to go scream in everyone’s faces that didn’t support me or doctors that wasted my time. I went directly to go see Dr. Kim from the Greater Newport Physicians Neurosurgery. He suggested what needs to be done and I knew I had decisions to make. As I left Dr. Kim’s office I caught wind by a friend of mine that that neurosurgeon had botched up his fathers brain. I felt sick inside. I had to get a second opinion and doctor really fast. I called my dad and he made a few phone calls and got the number and access to one of the best aneurysm surgeons in the country. The downside to this was that he was out of the UCLA medical center in LA and I had an HMO with the network being out of Newport Beach. I called every doctor I had seen and asked for a second opinion outside my network. I was denied by everyone and their mom. By this time I was so emotionally strained by the fighting day by day that I had to do that I turned into a pit bull and set everyone on fire until I got what I needed. I was calling everyone everyday and asking to speak with someone higher. I eventually went around my network and right back to my insurance company. I told them I was being denied and apparently it was illegal for them to do that to me. My insurance company got on the phone with them and reamed their asses. It was amazing. Finally, someone was fighting for me. My insurance company approved me to see the out-of-network doctor. ugh!!! the fight was over. I finally got to see the surgeon and got a date set. I am sure that this will be the hardest thing I will ever go through. If there is anything I can say to everyone is that I want you to be thankful. When your depressed, sad, crying, sick…just think about what you could be going through. Think about how healthy you are everyday. Thank god for it.
Thanks for listening.