3 weeks ago following a Dr. visit (GP) who ordered an MRI for headaches our son Mark (30 years of age)was diagnosed with an AVM in the left cerebral hemisphere at the junction of the frontal and parietal lobes. The size is 1.5cm transverse x 1.7cm AP x 3.6cm in total length extending from the periventricular white matter up to the vertex of the head. The major arterial feeders are from branches of both the left anterior cerebral and left middle cerebral arteries. Major venous drainage is via the cortical veins that extend to the left frontal lobe and the left sylvian fissure. There also appears drainage veins that extend to the sagital sinus. The distal vertebral arteries and basilar artery are patent. The anterior, posterior and middle cerebral arteries are patent. No aneurysm is appreciated. The majority of vessels have no signal voids indicative of high flow. There is no mass effect, edema or hematoma evident in the region. The ventricles are not dilated. There is no mass lesion evident in association with these abnormal vessels. This information is from 2 reports one with contrast and one without.
Currently we are waiting for insurance approval for an FMRI and following that, again with approval an Cerebral Angiogram. My son has Blue Cross Blue Shield Direct Access 10. Which is a PPO and it seems not many Dr's are accepting it.
My just need to pay it ourselves so he can be seen by a Dr. at one of the large hospitals in NY City either Columbia or NYU Medical.
He currently does not want to do anything for fear of his teaching ability and quality of life. He is extremely smart teaching Advanced Honors Program Calculus and he recently became a dad for the first time.
I am Mark’s dad. We need help with my son’s condition. Any direction, information, guidance, anything which can help my son would be so wonderful.
Thank you so much.