Tony: This is a beautiful idea to say thank you to those we love. These are who truly stand out on a very difficult journey we are all on… First of all as I told you I would come to this site but the reality of “being sick” didn’t set in…total denial so it took me awhile months before joining; first my biggest thanks is to God for many reasons…as I have said to you my friend, challeges are blessings and while this journey has its challenges in the end I knew God has always and will always be by my side. My faith has deepened so so much and it is a gift He gave as so many wonderful, new people are placed on my journey. My life is so so much more enriched, meaningful, I see life with my senses all becoming keener and humble, my friend, humility will always be at my side in life…everything is a gift…this Jersey girl will never take anything for granted in her life, nothing…Second as you know about my family, my children are who give me the strength to perserve and never ever take a negative for an answer in life…they need me and they are my strength. I would like to thank my drs. While drs. never totally agreement on tx, medicine is a practice yet they are all helping me heal to wholeness, whatever that means, and I am grateful for their dedication to helping the sick. Again my gratitude to them is to rasie money for research and this is what I promise and will do. Next are my friends on this site…you tony who are like my Aussie brother (love your Aussie accent on the tele) and all your weird words lol!, Lee Anne who I love like a sister, Caroline, Jaclyn, Beth, Connie, Hanne, gordy, Dave, jeff, William, Dipen…I could go on and on and on, esp ben for creating it… I love all on this site and I mean that and I pray for the everyday; and even though when I read their stories…they make me strong at 3 AM when I was upset last year and felt why is no one getting how I feel…I mean the best thing in the world was for me to join this site…so many scared nights I would go on line and felt comfort because although we are all on different journeys with our AVMS, we all get it…the headaches, frustrations, being afraid, not knowing… but the support I have gotten will always remain here wherein I will always be here for all. truth is we are all SURVIVORS! Tony you will always be my special friend because you kept me going on many an upset night and you truly cared…as you know being a nurse I was so afraid I wouldn’t work again but realized I was nursing on this site, a different kind but isn’t nursing just about love and compassionate and being there…you are awesome my friend for making me realize that! I will give you the biggest hug when my feet hit Aussie soil someday hopefully your wedding! I also thank my friends, especially one who is my most dearest and beloved. In his line of work he deals with much people “stuff” good and not so good but has always made the time for me…always listened…always cared… he has been with me on this journey from the day I was diagnosed from getting a email from out of the country to setting up a date for my first embo. I am sure as we speak freely here we find out who are true friends are…and I have tears in my eyes as I type because God has blessed me with a wonderful human being that I call my best friend who I love more than he will ever know. I don’t think I could not have continued on this journey without him. He has inspired me through every setback, headache, isnurance problem, surgery, when I said no I am afraid he said go for it!.. I mean it became his journey, actualy all my challenges in my life were on his journey as my friend too…that is a friend and again it goes back to thanking God for placing my friend in my life… my only hope is that someday I can be there or do something for him… When you heart is held by someone who is always sthere, your load is lighter and a smile can be placed on your face when sometimes it is so difficult… priceless…he is my heart’s safety net…I love you my friend so so much!
I am hoping for my last embo the first week of August and I know he will be here too, cannot imagine him not, needs to come full circle yet I will live in the present as we all know stuff happens and changes but again, God is good and I have many good things in my life, and with a best friend at your side, all things are possible with them and God… God bless!
Love you all! God bless,xoxoxox
Just Mare, the Bluehead from Jersey!
RHKA(if you don’t know what that means, ask William…he’ll tell you!)