Well, I had another appt. with the surgeon on Jan 27th and he said that the angio they did revealed that the AVM is too large to treat with Radiation or Onyx, so removal altogether is the only option. The headaches are 24/7, taking Oxycodone for relief which is helping somewhat. 7 months now that this headache is in my head and only since Dec have I taken something that actually relieves the pain for about 6 hours at a time. At least that is a plus and allows me to function with some comfort, on Feb.23rd they are taking some more tests prior to surgery which I believe will be in March. The good news here is that they can operate with the usual risks and get rid of the avm altogether, for that I am certainly thankful. I know there are many people that they cannot do much for because of the area the AVM is located and I truly feel for them. Thank you all for your support, you don’t know how much it has helped me through this so far.
Wonderful you get a window of time that your head feels a bit better and surgery is a go for you. I had my craniotomy last Jan and was more thankful I was able to go that route. The waiting for other treatments to work would’ve brought me to the brink of insanity. Keep us posted and get rest if you can. I remember my headaches and as tired as I was I couldn’t sleep because of the pounding.
Hi Binky. Wow…Feb. 23 is just around the corner and then March will be here before you know it!!! I will be praying for you!!
Thanks Jaime and Barbara and all the other nice folks for all the kind words and support…it really helps when your going through this. I hope all is well with all of you and your always in my prayers.
Hi Binky, thank you for your kind words. I wish you all the best with your treatment. Just keep hanging on, keep putting one foot in front of the other and you’ll find you’re where you need to be in no time.