thank you all for your replies, they are most reassuring.
Wakeboarder , did your son ever have the ebolisation agent extrude from his skin, as have heard in superficial areas this can be the case like me.
Sounds like he has already been through the mill, fingers crossed am thinking of you guys.
Situation today is Onyx is still coming out, some did come away through the night, but as said is still coming out.
My understanding is that embolisation chemicals, pick your poison are there to stop flow, but if the agent is coming out then how on earth can it do its job, hence my worry, a worry i have expressed to the NHS here in Scotland time and time again, as well as all the other complications i have had since they started.
My wife and i have been everywhere in our city but with no luck am afraid, we did ask my doc for a referral to another city in Scotland or even further afield but they refused, they said it must come from the surgeon.
We no longer know what to do anymore, the hospital ( ward ) are truly shocking, and mostly all of the docs in the hospital have never dealt with an AVM and so read the surgeons script, the surgeon just passes the buck with contradictory statements, one minute saying one thing the other another, we are at a total loss and now get the feeling the hospital think i am being a pain.
What do we do, the onyx is still coming out which i feel is not the way this should be, last time i was rushed in for emergency surgery to stop the bleeding due to exactly this, now they are saying this is normal after 6-8 weeks healing from the last surgery, am scared something i never am, but this is scaring me, as they just dont know what to do.
They are to leave me and have said tissue will grow around onyx, but how can that be if it is a foreign body, also if it was pushing its way through my skin as before , leaving me in sheer agony then why would my body/lip allow tissue to grow around it, just does not make sense.
Am really getting to the point in my mind that i just aint gona make it, mostly due to the inexperience up here, and how they are just fobbing us off, this is really worrying, all they need to do is make sure this onyx does not come out, is that so difficult, everything else is fine.
Boy oh boy, am seriously stressed, have already started thinking the worst if this all starts again, have prepared letters for my family vids etc, they depend on me bigtime, am sure just like the rest of yours do, my wife is a star. But i know this aint good to say the least.